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Cystic Fibrosis

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Cystic Fibrosis: The Ultimate Teen Guide (It Happened to Me (the Ultimate Teen Guide))

In this book the day-to-day dealings of life as a cystic fibrosis patient are described through a series of flashbacks to a time when the author was an 18-year-old volunteer at cystic fibrosis overnight camp. From diagnosis to death, this book leaves no aspect of CF untold. Given 5 stars by Amazon.com readers.

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12

Cystic Fibrosis: A Guide for Patient and Family

This reference text is designed specifically for patients with cystic fibrosis and their families. It explains the disease process, outlines the fundamentals of diagnosing and screening, and addresses the challenges of treatment for those living with CF. Includes new material on carrier testing, infection control, and more. Given 5 stars by Amazon.com readers.

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13

Cystic Fibrosis Pharmacy

Find all your CF supplies at the Cystic Fibrosis Pharmacy. They offer quality pharmaceuticals, regular shipping, personal reimbursement assistance, specially compounded medications and access to compassionate care programs.

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14

What Do You Know About Cystic Fibrosis? A Quiz.

Cystic fibrosis (CF) is an inherited, often fatal disease of the body's mucus glands. It affects about 30,000 children and young adults in the United States, most of them descendants of people from northern Europe. Find out more about CF by taking this quiz, based on information from the National Institutes of Health (NIH).

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15

Join a Support Group for Cystic Fibrosis: Yahoo Groups

An online forum to promote research, share experiences, and synthesizing information with the objective to improve the conditions of cystic fibrosis. All members can contribute in our mutual desire to find a cure to this disease. Membership is free.

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16

Cystic Fibrosis Treatments - DrugDigest

DrugDigest.org covers the treatment options for Cystic Fibrosis. Covers nonpharmacologic (non-drug) therapies, pharmacological (drug) treatment, and information on the drug classes used to treat Cystic Fibrosis. Look under conditions and treatment.

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17

Cystic Fibrosis: A YouTube Video

Watch a video to learn more about the #1 genetic killer of children and young adults in the United States, Cystic Fibrosis, and what you can do to help! 5 stars, 8:01

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18

A Journey With Your Child and Cystic Fibrosis

When your child is diagnosed with Cystic Fibrosis, life’s journey takes on new twists and turns. Certainly Cystic Fibrosis isn’t a trip down easy street. But the time you spend learning about these obstacles, recognizing as you go through these emotions and how to get past them, will be time well spent.

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19

Find a Cystic Fibrosis Care Center

There are currently 115 Cystic Fibrosis Foundation (CFF) treatment centers scattered throughout the United States. These unique treatment centers specialize in diagnosing and treating cystic fibrosis.

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