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In this book the day-to-day dealings of life as a cystic fibrosis patient are described through a series of flashbacks to a time when the author was an 18-year-old volunteer at cystic fibrosis overnight camp. From diagnosis to death, this book leaves no aspect of CF untold. Given 5 stars by Amazon.com readers.
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This reference text is designed specifically for patients with cystic fibrosis and their families. It explains the disease process, outlines the fundamentals of diagnosing and screening, and addresses the challenges of treatment for those living with CF. Includes new material on carrier testing, infection control, and more. Given 5 stars by Amazon.com readers.
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Find all your CF supplies at the Cystic Fibrosis Pharmacy. They offer quality pharmaceuticals, regular shipping, personal reimbursement assistance, specially compounded medications and access to compassionate care programs.
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Cystic fibrosis (CF) is an inherited, often fatal disease of the body's mucus glands. It affects about 30,000 children and young adults in the United States, most of them descendants of people from northern Europe. Find out more about CF by taking this quiz, based on information from the National Institutes of Health (NIH).
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An online forum to promote research, share experiences, and synthesizing information with the objective to improve the conditions of cystic fibrosis. All members can contribute in our mutual desire to find a cure to this disease. Membership is free.
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DrugDigest.org covers the treatment options for Cystic Fibrosis. Covers nonpharmacologic (non-drug) therapies, pharmacological (drug) treatment, and information on the drug classes used to treat Cystic Fibrosis. Look under conditions and treatment.
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Watch a video to learn more about the #1 genetic killer of children and young adults in the United States, Cystic Fibrosis, and what you can do to help! 5 stars, 8:01
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When your child is diagnosed with Cystic Fibrosis, life’s journey takes on new twists and turns. Certainly Cystic Fibrosis isn’t a trip down easy street. But the time you spend learning about these obstacles, recognizing as you go through these emotions and how to get past them, will be time well spent.
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There are currently 115 Cystic Fibrosis Foundation (CFF) treatment centers scattered throughout the United States. These unique treatment centers specialize in diagnosing and treating cystic fibrosis.
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