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Cystic Fibrosis

1

Staying Healthy With Cystic Fibrosis – Cystic Fibrosis Foundation

Most people with cystic fibrosis can lead active lives, depending upon the severity of their disease, with routine therapies and regular visits to a Cystic Fibrosis care center. By following a treatment plan developed with their CF care center team, many people with CF can slow down the progression of their disease. A healthier body is better able to deal with bacteria and chronic lung infection.

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2

Cystic Fibrosis Podcasts

Download podcasts that cover stories dealing with Cystic Fibrosis. Topics include patient stories, treatments, and ways to stay healthy.

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3

Wikipedia Entry on Cystic Fibrosis

Cystic fibrosis is one of the most common life-shortening, genetic diseases. In the United States, 1 in 3,900 children are born with CF. It is most common among western European populations and Ashkenazi Jews; one in twenty-two people of Mediterranean descent are carriers of one gene for CF, making it the most common genetic disease in these populations. Learn more about Cystic Fibrosis from Wikipedia. Wikipedia is a free online encyclopedia that is written collaboratively by volunteers.

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4

What Are The Signs and Symptoms of Cystic Fibrosis?

Most of the symptoms of cystic fibrosis are caused by the thick, sticky mucus. The most common symptoms are discussed in this article from the National Heart Lung and Blood Institute.

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5

Cystic Fibrosis Forum

A forum and message board for those suffering from Cystic Fibrosis and their parents and friends. Have your questions answered by others in the community.

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6

Find a Genetic Counselor – National Society of Genetic Counselors

Genetic counselors work as members of a health care team, providing information and support to families who have members with birth defects or genetic disorders and to families who may be at risk for a variety of inherited conditions. They identify families at risk, investigate the problem present in the family, interpret information about the disorder, analyze inheritance patterns and risks of recurrence and review available options with the family.

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7

Genetics Screening for CF and CF Carrier Status

The American College of Medical Genetics and the American College of Obstetricians and Gynecologists recommend that a panel of 23 of the most common CFTR mutations be used to screen general or targeted populations for CF and CF carrier status. These panels check the DNA of each member of a couple contemplating a pregnancy for each of the selected CF-causing mutations. If two CF mutations are identified, then a genetic counselor should be consulted to explain the relative risk the couple has of conceiving a child that may have CF.

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8

Understanding CF Testing – From Lab Tests Online

Lab Tests Online is a public resource on clinical lab testing. The site helps the patient or family caregiver to better understand the many clinical lab tests that are part of routine care as well as diagnosis and treatment of a broad range of conditions and diseases.

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9

Find Clinical Trials on Cystic Fibrosis

ClinicalTrials.gov is an easy-to-use Web site that provides regularly updated information about federally and privately supported clinical trials, including more than 150 open studies on Cystic Fibrosis.

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10

Confessions of a Cystic Fibrosis Husband: A Personal Blog

A personal blog written by a husband of a woman suffering from Cystic Fibrosis. The writer shares his story with others coping with the disease. He discusses the health troubles his wife faces as well as how he deals with it all. Also included are the stories of the birth of his daughter.

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